The hardest part of my son Desmond’s aplastic anemia diagnosis was knowing that my child was seriously ill and there was nothing I could do about it. As a parent, this makes you feel helpless, and that is heart-wrenching.

Since I couldn’t physically help Desmond, I did the next best thing: I prayed and did as much research as I could. I wanted to be as knowledgeable as possible about his disease and its treatment, so I could have...