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KIWI: Kids Inquire, We Inform

Helping children and teens cope with a parent's cancer

A cancer diagnosis can create a variety of questions for patients who have children. Kids Inquire, We Inform (KIWI) is a program for patients and caregivers to answer these questions and provide tools to help children and teens cope with a parent's cancer.

Whether you're wondering how to tell your child about your diagnosis, treatment, progression or recurrence, there are quite a few things to consider before beginning these important discussions.

To start, think about your child's age and developmental stage. Some children are too young to verbalize questions and others may be too afraid to ask. Also, what does your child already know about cancer?

Keep reading to see questions frequently asked by patients and caregivers.

What does the research say?

It's common for parents to protect their children by withholding information that may be upsetting, but research shows the following:

A parent's cancer diagnosis affects a child whether or not the child is informed of the condition.
Anxiety levels are higher in children who aren't informed about their parent's condition, compared to children where the issue is discussed.
For parents of teenagers, an important aspect of coping is ongoing communication between the teens and their parents during the course of the illness.

So, what does this research mean to parents? Simply put, it means that honest, age-appropriate communication is best.

How do I talk to my child about cancer?

First, it's crucial to say the word "cancer." This is essential so the child will not associate the parent's diagnosis with another illness children can catch, like the flu or a cold. The following are common questions many children have, and they're important points to consider while talking with your child:

Can I catch cancer?
How does cancer happen?
Is it my fault my mom or dad got cancer?
Will my mom or dad die from cancer?

Remember that children may not ask these outright, but many will be wondering about them. Because children pick up on social cues, they may sometimes create scenarios in their heads far worse than reality when not given honest communication about what's happening.

Honest and age-appropriate communication with children models the behavior that it's OK to ask and talk about cancer.

What behaviors should I watch for?

If your child has exhibited behavior changes since a cancer diagnosis in the family, it may be a sign they're anxious but not talking about it. Some behavior changes to watch for include:

Regression, such as reverting back to thumb-sucking, bed wetting, etc.
Depression or excessive sadness
Decline in grades
Anger or outbursts
Physical complaints, such as frequent headaches or stomach aches
Withdrawal

Many of these behaviors are common and age-appropriate, but you might want to seek additional support if the changes are associated with the timing of the diagnosis and are unusual reactions for your child. Also, be sure to inform your child's teachers and school counselor about your cancer, as they can help watch for behavior changes and provide support when needed.

Support/Resources

The KIWI program has three components - Kid Kits, CLIMB®, and "Kid to Kid: Your Parent Has Cancer." For more information about KIWI, how to talk to children about cancer, and/or children's coping, contact the Department of Social Work at 713-792-6195 or tell your doctor or nurse that you would like to speak with a social work counselor.